Saturday, January 3, 2009

Emily Update

Well, I talked with Emily's doctor yesterday. Since she has been on oral antibiotics since early November, and she is still not "clear", and we have had a slow decline in PFTs and she has lost some weight . . . we are going to do a bronchoscopy. It has been two years since Emily has had one, so the doctor thinks this may help us find something we are missing. We may start IVs at that time as well, depending on what they find with the bronchoscopy. She will probably go in on this Friday, but we will finalize the plans on Monday. I have already talked with Emily about this as she likes to have a full grasp of things that are going to happen to her (after all, this is the girl who since the age of 4 has refused to look away when they draw blood). I am apprehensive as we have not had to go down this road in so long, but I try not to show it in front of her. It will be a long week back to school with all of this looming ahead, but I know in my heart that we need to do something to get her back to her baseline. I will follow up from there . . .in the meantime please pray.


donna0137 said...

Cheryl (sis) me and kids had a wonderful time collecting more memories with you and your family over the holidays (Thanksgiving & Christmas). It always breaks my heart when Emily has to sit and do her vest & breathing treatments when the other kids get to run off and play. But, being the strong person that Emily is, she handles it very well. I will be keeping Emily in my thoughts & prayers on Friday (as I always do). I know it must be frightening, but I also know that Emily is the bravest little girl I have ever met (just like you). Love you all lots!

Alicia said...

Will definitely be praying and looking for an update whenever you post next.