Well, after allowing Emily's cultures to grow out from the bronchoscopy for several weeks I finally had confirmation that she grew no bacteria! This is amazing news, at least we know there is not a terrible bacteria that is responsible for her slight decline in lung function. So now when we go back to the dr. next month we will discuss what could be causing this . . . like I have said previously her current function is not bad, it is just not as high as we have had it in the past.
On Thursday we had our kick off meeting for team captains for our Great Strides walk on May 30th. There were several new faces/teams--Donnie's high school National Honor Society is going to have a team, there was a mom of a one year old who was just diagnosed, and a 19 year old girl with CF who is walking in Great Strides for the first time! It was an exciting meeting to know we are going to grow our walk this year-it is only the second year we will have it in Monroe, NC (Union County) and I am so excited about the prospects!
2 comments:
Hi, This is Lily from the Cystic Fibrosis Foundation. Thank you for supporting Great Strides!
I'm catching up from being really behind on blogs, but I wanted to definitely tell you how great this is to hear!
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