So, we got back home on Wednesday and what a relief it was to sleep in our own beds! So Emily is doing tigecycline and imipenem by IV and oral clarithromycin to treat the m. abscessus. Last night was the first time she was on all three antibiotics and let's just say they have been rough on her stomach! Feel bad for the girl when she's like that! Started using the zofran before IVs this morning and that seemed to do the trick as she has felt quite better today.
So treating the m. abscessus is hard on a 10 year old. She is hooked up to IVs for 5 hours a day total and we are doing chest PT 4 times a day for 6 weeks. Not to mention all the regular meds and some extra vitamins here and there. Not much time in the day for fun when all of that is said and done. But, Em has a remarkable spirit and always seems to find the positive in things. If we all had her attitude and sense of faith and hope...well, let's just say the world would be a better place! Hopefully, this is the last time we will have to treat the m. abscessus!
So treating the m. abscessus is hard on a 10 year old. She is hooked up to IVs for 5 hours a day total and we are doing chest PT 4 times a day for 6 weeks. Not to mention all the regular meds and some extra vitamins here and there. Not much time in the day for fun when all of that is said and done. But, Em has a remarkable spirit and always seems to find the positive in things. If we all had her attitude and sense of faith and hope...well, let's just say the world would be a better place! Hopefully, this is the last time we will have to treat the m. abscessus!
2 comments:
Hi, I just started following your blog. I've not heard of that bacteria before! Wow ... our CFers really are like a petri dish.
I hope Emily starts to feel a lot better soon!
Emily sounds amazing! I'm sorry you are having to go through all of this. I hope she feels better very soon.
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