Douglas, Emily and I spent a hot afternoon at the Kick CF event in Charlotte (http://www.kickcf.com/). Several Carolina Panthers players have a kickball game with a local business. It is a fun time for all. They raised about $60,000 last year--not sure what the total was today, but I am sure it was substantial. Kudos to Panther Jordan Gross for starting this annual event last year (he has a niece with CF). I met a lady (wished I had gotten her name) who had made beaded bracelets for a CF fundraiser for her Great Strides team. She has two boys with CF--both have mic-key buttons. It was so hot they had their shirts off and Emily saw them and asked what they were. I have told her in the past that she might have to get one if she did not keep eating good. So, she asked lots of questions about feeding tubes (which I did not have a lot of answers to) and really paid close attention to the boys. I could tell she was deep in thought and I think it was yet another one of those learning moments she had about CF.....Here are a couple of pictures from the day!
Saturday, April 25, 2009
Tuesday, April 21, 2009
Well, we finished three weeks of Bactrim--which did not seem to touch Emily's current congestion--so now we are in the middle of three weeks of Augmentin to see if that will do the trick. Hopefully! We go back for a clinic visit in two weeks so we hope for a good report and improvements by then.
For spring break we met my folks in Gulf Shores, Alabama. They had their camper at the state park and Douglas, Emily, and I stayed there with them. We really enjoyed the time with them in such a beautiful place. We went to Fort Morgan (biggest naval battle of Civil War), the beach, an amazing trail, Pensacola to see the Blue Angels. It was a busy time but so much fun. Donna and her family were there the week before so we overlapped our stays by a couple of days so "the cousins" did get to play together for a bit. Here are a couple pictures from the trip.